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012: Cancers Secret, not so Secret, Club

Updated: Jun 22, 2021


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Episode Summary:

"There is a secret, not so secret, club that comes with a cancer diagnosis, and it is amazing." Join Tammey as she illuminates the power of community and "tribe." Listen and learn about the gifts of friendship, belonging, and new identity that can and do follow those terrifying three words "you have cancer."


Topics in this Episode:

  • Intro

  • Alive in the diagnosis

  • A diagnosis that blends with identity

  • Seek the long end of the curve

  • The gift of people

  • Time is our currency

  • Find your club

  • A sneak peek of the up-and-coming guest lineup

  • Sign off

Contact Information and Social Links:

Resources:

A special thank you to our sponsor, Riverdance Soapworks. Handcrafted products we personally use. Visit www.riverdancesoapworks.com and let them know you heard about them from Tammey.


Transcript:

Intro

Hello, and welcome back to your killer life. I am Tammey Grable-Woodford, and I am your host today, and I am so excited to have you back with us on the podcast. So today we are going to be talking about, Oh my goodness, I call it the secret, not so secret club. And when you're diagnosed with cancer, It's a bit of an exclusive club that you get an invite to.


And, uh, I was ever so thankful for it. So we're going to talk a little bit about that today, about what an honor it is to be a member of it and how important it is when you're first diagnosed. So for me, when I was first diagnosed, I immediately felt very alone. I didn't have anyone in my family who had ever been diagnosed with cancer, at least not in my immediate family.


And I was really in uncharted territory; I had never even really had any significant health problems. And so for me, I was really staring down this just unknown, into the unknown and, and really confused, lost, scared. Oh gosh. I didn't, you know, no idea what to expect. And of course, when you're first diagnosed with cancer, at least for me immediately expecting the worst, right?


Alive in the Diagnosis

Within probably 72 hours of my diagnosis, someone I knew in the community stopped by my office, and they brought with them a business card for their oncologist. And this was somebody in the community that... a County commissioner... did not know that it was somebody who had been stage four for some time. And it was this beacon of light and hoped to have somebody stop by and say, "Hey, I am living with cancer. I am alive. I am living my life to the fullest. Here are my people."

And he left with me, his oncologist, his medical oncologist, and his naturopathic oncologists' information.


That was huge for me. And I know I have thanked that person and I'm definitely going to have to send them a link to this episode, because I can't tell you from my heart of hearts, how important it was for me to see someone not just living, but alive in their diagnosis.


And that was over five years ago. Amazing, right? Then, I was amazed at the number of people that made themselves available to me. That would reach out and say, I've been diagnosed, or my sister has gone through this, or I have a friend and, or even strangers that would reach out to me. I got letters at the office that were absolutely amazing.


I had flowers sent to me from people that I didn't; I didn't, I didn't know. So it was just such this amazing club. I had the folks that, um, relay for life, stopped by the office with, with roses. And it was interesting to me how quickly the news traveled, but the way in which it traveled and the result of that news reaching others.


I... being newly initiated into the club, had a girlfriend say my sister has been through this and connect me with her sister. Her sister subsequently sent me a book that was absolutely amazing, and such a great resource for me. I'll actually put it into the show notes as I was first diagnosed, and subsequently, I went on to share the book with someone else. I had people who had, not just breast cancer, people who had esophageal cancer, testicular cancer, all types of cancer. I had a very good friend of mine introduced me to one of her childhood friends who was diagnosed the same month that I was.


And so I had a cancer buddy going through it. And then I, unfortunately, since my diagnosis have had friends and people that I've worked with that have been diagnosed.


But here's the thing. It's such an honor, as odd as that might sound, it's such an honor to be a member of that club because you get to bring hope. And you get to be a resource for those who are going through the same thing or something slightly different, but still somebody who can understand those fears and that trauma and the depression and the fatigue and the uniqueness of this diagnosis. Even though all of us have chosen different treatment paths, all of us have had different oncology and medical teams. All of us have had different surgeries and different outcomes. There's still something about being able to talk to someone who is there or who has been there.


A Diagnosis that Blends with Identity

I say, "is there," someone who "is there" because frankly, you never leave your cancer diagnosis. I won't speak for everybody. I, now over five years, have never been able to walk away from my cancer diagnosis.


That doesn't mean it runs my life. It doesn't mean that it is my every pressing thought every moment of the day. In fact, it has sort of benefited me in that it does make me aware of the importance of living my life to the fullest. The the the gift that every day is because something unique about cancer is that, and we all know this, we're all headed to the same place: death and taxes. Nobody gets out of it. Right? True story. So we all know that, but there is something about that cancer diagnosis that brings you so close to the end and in such an unexpected and untimely way that it's jarring. It really provides an opportunity for reflection.


Cancer is scary, and you don't want to go it alone. And very few of us do. We have friends, and we have family, but there's something different about somebody who can share with you their experience. And there's something critical about being able to reach out to someone who understands for those of you who have not been diagnosed with cancer.


It might surprise you to know that we can have a conversation and be an absolute tears talking about terrible news, a bad scan... and in the next breath, we can be laughing and loving.


It's not a continuously sorrowful existence, nor is it a continuously joyful or grateful existence. It is a complicated existence.


I'm thankful for those that have shown me. The way through their experience, I'm honored to be a person that some people have chosen to reach out to. It's a joyful, and it's a sorrowful, and it's a heavy gift.


When I think back to my cancer buddy at the beginning and Danna, I love you, when I think back to to Lori, who shared with me her experience and treatments. When I think back to Randy when I think back, and I know I'm gonna forget somebody, and I'm going to feel terrible about that, but I think back to so many people. To Suz connecting me with her sister too, you know, I just so many people and so much love and so much empathy. To Curt, who shared his own story.


Each of these people have provided me with wisdom, with love, with their energy, the gift of their time. And it's so... amazing that I'm five years out. And these folks that were diagnosed before me or battled at the same time I did are continuing to thrive. And I think that that is one of the more bigger myths that I want to bust.


Right?

When we're diagnosed, look, we don't know when our time is going to come. And I just had a powerful conversation with a friend of mine who, who is battling metastasis and doctors raised, or gave a timeline, and I just wish they wouldn't do that.


I know that they want us to prepare as cancer patients. And I know there's the whole false hope dichotomy. But the thing is, none of us has some secret expiration date that only a certain provider can see. And the reality is that I got second opinions on everything. And guess what? Rarely did they agree on anything!


Seek the Long End of the Bell Curve

In having that conversation, pointing out that really when you're given this diagnosis, your job is to do everything that you can to be on the tail end of that bell curve, right? Where your whole purpose is to extend your life and maintain a quality of life for the longest amount of time that you can. And so you've got to feed yourself and feed your soul and feed each other.


It is an honor when a newly diagnosed person reaches out and says, "Hey, I was just diagnosed, talk to me."


I'm so thankful for all of those people who were there for me when I was at that moment.

With cancer came community. And I did not expect that. I don't know what I was expecting. I don't know if I was expecting, I dunno, I was probably expecting what you see on commercials during pinktober. Right? Like that's what I was expecting.


And now here I am podcasting and bringing to you, additional women and people who have had a cancer experience and are living and thriving through it.


Cancer does not equate to an immediate demise. People are living with cancer for longer periods of time. And I wanna, I wanna kind of start reframing the conversation around living with this as an autoimmune or, or as a, I guess, terminal disease, but living with it really that's the bottom line living with cancer instead of waiting for cancer to rob us of our essence and rob us of our life.


One of my oncologists, I'll be honest. I wanted to throat punch him, but one of my oncologists said to me, "Many people find cancer to be a gift."


Okay. If you were if you were newly diagnosed and you heard me say that, I know you want to throat punch me right now. As odd as that might sound in the end, I shouldn't say in the end, later... that did present to be true for me.


It created opportunity for me to make the changes in my life that frankly were passed due. For me to begin prioritizing things, and more importantly, people. Created the opportunity to step away from my identity, being my work to exploring and getting to know my identity as me.

Who I am. What I like. What I enjoy doing.


The Gift of People

Cancer was a gift of people. Some of the most amazing, strongest, most talented, oh, most giving, most loving, most joyful people, are people who are thriving through this.


In some ways, it's a requirement because for us to get through this... and I will tell you one thing, a couple of my doctors agreed on is that mindset was critical to success when it comes to cancer, that mindset is what is going to create good outcomes.


And when they say good outcomes, then they mean live. Right?


And that was so critical. And so, so important for me to understand. And even though I did not like it, when I heard the oncologist say it, in the end, I can see how it is that patients had shared with him how important that transition and transformation was and what a difference it made for them in their lives.


That's not to say it doesn't get heavy. I had a heavy week. I had a friend reach out with a new diagnosis, and I had a friend reach out because they had a friend who was newly diagnosed, and I had a friend reach out because of results of a recent scan.


And I cried, and I was exhausted, and I was genuinely hurting for others, in a world where we almost sometimes glorify selfishness and self-focus.


What you find in the cancer community, in that cancer club, if you will, that secret not so secret club. Is selflessness. It doesn't matter what I'm doing when someone is recent, has recently been diagnosed. If they need to have a conversation, we're going to have the conversation.


Time is our Currency

Because there is no greater gift that I can give than my time, and if you have a friend or a family member who's been diagnosed with cancer, just know the currency we trade in is time.

There is truly... people say time is money. I'm going to tell you time is your life.

Time isn't money. Time is your life.


It is quite literally an exchange of your life for whatever it is that you are doing. For whomever, it is that you are talking to. For every little bit of our existence. Time is life.


It's interesting to think of time as your currency, and it's critical. And it's an awareness and a gift of awareness that comes with the cancer diagnosis.


So if you're feeling like you haven't found your club, your community, or if you're one of those who has really kept your diagnosis to yourself and not really reached out. And you're feeling like you; you want to find someone who has a deeper understanding, just know there are so many people.

So many people.


And you may very well in your circle of friends, have a number of individuals who are surviving and thriving or have that cancer history. But if you're someone who maybe doesn't, because sometimes as odd as it is, sometimes it is easier to talk with a stranger, right? It's easier to talk with someone who, who doesn't know you as intimately or, and there's a certain amount of confidentiality that comes with that.


Find Your Club

Definitely talk with your medical team, your nurse navigator. There are so many groups that you can find Facebook groups; we've got a group "The Breast of the Story" that we're launching. So if you want to come, find us out there on Facebook.


There's a number of places that you can connect with people who have gone through or are going through a similar experience.


And I say similar because none of us can have the exact experience even with the exact diagnosis and the exact treatments. The overall process is going to be different. How our bodies react is going to be different, our mental fortitude, and how we react and respond is going to be different.

But don't rob yourself of the club.


You know, none of us volunteered for this... what I, so affectionately call shitshow of cancer. None of us volunteered. And yet we're here, and we're making the best of it, and we are all working through it.


So you don't have to do that alone.


So definitely reach up and reach out. And I want to thank, I know I'm gonna forget somebody as I work down my list, but I want to thank Suzanne for introducing me to her sister and for just being a rock-solid friend throughout it all, as somebody who has not personally experienced cancer, giving me her love and her time and checking in.


I want to thank Lisa. I want to thank Danna. My goodness, my, my cancer power partner. I want to thank Randy for connecting me with his amazing team. I want to thank Lori for introducing me to her amazing plastic surgeon. I want to thank gosh, I know I'm going to forget people. And I'm going to feel terrible about it, but there are just so many folks that have reached out and, and not just in the beginning, those are folks that I'm really talking about in the beginning.


But since then, I've made such great friends and connected with amazing people. And I just am so grateful and so thankful to have them all in my life. And I'm so honored to become a resource for folks as I continue my path to healing and continue to thrive through this and hopefully be a source in the light.


And I just, in some strange ways, I have gratitude, not for cancer. I feel like I need to be clear on that because this... it's not been fun, but I have gratitude for the lessons and the people and the opportunities. For the love, for the self-discovery for... for all of that. And I will also be completely transparent and tell you that I have days that I curse it, because like I said, you can easily go from a moment of laughter to tears and back to laughter again. And it's perfectly normal. It's even probably pretty sane.


So, all right. Cancer, the secret, not so secret club. If you are a member, I would love to have you join us out at The Breast of the Story and join our Facebook group. And as we build the community, I'm going to tell you for me; personally, I am someone that chose, um, alternate treatment paths.

And with my stage 3B diagnosis, I actually declined chemotherapy, radiation, and hormone suppressing therapies, and just did mastectomies and reconstruction for my lobular cancer. And many times when I was trying to find kind of a space where I could connect with other breasties, I was a little bit of an odd one out.


I had folks that thought I was crazy because I, um, declined many of the conventional modalities. And then, I had people who thought I was crazy because I had any conventional modalities or treatments. And the bottom line is like I said, none of us, none of us volunteered for this shitshow we're here, and we are making the best decisions that we can with our medical teams, for our treatment and balancing treatments with quality of life, as well as quantity of life. And really the bottom line is all of us have the same goal, which is to be on that long end of the bell curve as we continue to live, and love, and enjoy the gift of life.


So. Thank you so much for joining me on today's episode, I will admit this was sort of a hard one for me. I was feeling a little heavy with phone calls and, and in talking with folks and, and that heaviness is just frankly, you know, it's, it's battling your own inner insecurities and doubts and, and trauma quite frankly, from the diagnosis as you are there, and supporting and loving somebody who's had that news. And I think in the future, we'll do an episode on what, what to say and what not to say as a friend and some gift ideas and all of that good stuff too, because I always am so appreciative and thankful when I have someone reach out and say, I don't know what to do or say.


And, you know, I we're all different, but there are some basics. In fact, I think we'll start a thread on that too, and I'll read some off. So anyway, maybe we'll do a bonus episode with some call-ins. That'll be fun.


All right. Thank you so much for joining me on this episode of Your Killer Life. Be sure and check out our Facebook group, The Breast of the Story, because there is always the rest of the story, but you know, of course, we have to do a play on breast because it's breast cancer and make sure and give us a like, or a follow.


I always forget where the little bell is on the YouTube. Yeah, I'm that old on YouTube so that, you know, when a new episode is, um, uploaded, and thank you again so much for joining us.


Closing and a Sneak Peek of Upcoming Guest Lineup

And we have got some pretty spectacular guests coming up, so I'm pretty excited. You guys, we do have a male breast cancer survivor who's going to be joining us on an episode soon. We have an amazing belly dancer who continues to dance, and, uh, I cannot wait to introduce you to her. And then we've got somebody who's going to be talking with us about sexy soul searching, and that is going to be pretty fantastic. So I've been lining up guests for us.


And then, of course, we're going to start talking about some things like reconstruction, and I'll be sharing my stories and also reaching out and talking with other women who have had other reconstructive options and including, and I am so excited about this, but the aesthetic flat closure, which is amazing. And I'm so glad that that is now being recognized as the viable reconstructive option that it is. And we will also talk with some folks who have explanted. So we're really gonna cover all kinds of things in upcoming episodes. And you know, we're not trying to paint this with a broad brush of everything is perfect and beautiful, nor are we going to paint it with a broad brush of everything is terrible. We're just going to continue to have some really real talk about breast cancer, and we're going to continue to talk about how we can continue to build a Killer Life.


Thanks so much. You guys have a great week, and we'll see you next week on the next episode. Bye.


Remember the conversations you hear on the show are based on unique experiences and varying diagnosis. And we all had our own medical teams. We are not giving medical advice. So if you hear something inspiring, please talk with your providers.
 

#breastcancer #medicaladvocacy #yourkillerlife #yourkillerlifepodcast #ILC #bilateralmastectomies #cancersurvivor #cancertrauma #cancerptsd #cancercaregiver #lymphoma #theboobiequeen #boobiecrowns #lifrauminisyndrome #lobular


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